Cancer Outcomes and Services Data Set
Provides the standard for secondary uses information required to support national cancer registration and associated analysis.
About this standard
- Publisher
- NHS England
- Reference code
- DAPB1521 Amd 89/2022
- Publication date
- 11/09/2023
- Status
- Active
Show definitions of statuses
Active. Active standards are stable, maintained and have been approved, assured or endorsed for use by qualified bodies.
Deprecated Deprecated standards are available for use and are maintained, but are being phased out, so new functionality will not be added.
Retired standards Retired standards are not being maintained or supported and should not be used.
- Standard type
- Collections
- Information standards
Show definitions of standard types
Collections. A Collection is a systematic gathering of a specified selection of data or information for a particular stated purpose from existing records held within health and care systems and electronic devices.
Extractions. An extraction is a type of collection that is pulled from an operational system by the data controller and transmitted to the receiver without additional processing or transcription by the sender.
Information standards. Information standards are agreed ways of doing something, written down as a set of precise criteria so they can be used as rules, guidelines, or definitions.
Technical Standards and specifications. Technical standards and specifications specify how to make information available technically including how the data is structured and transported.
- Contact point
Link to standard
- Documentation
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- Applies to
- Cancer centres and Cancer units
- Electronic systems\u0027 purchasers (systems used in NHS commissioned cancer centres)
- Electronic systems\u0027 purchasers (systems used in NHS provider services)
- Impacts on
- Implementation of this information standard impacts all health IT systems suppliers providing systems to the above providers; suppliers should work with their customers to determine necessary changes. Users of secondary data about cancer will need to review their current use and determine appropriate changes.
- Associated medias
Further guidance is published by the National Disease Registration Service (NDRS):
- Conformance date
- 01/07/2024
- Effective from
- 11/09/2023
Topics and care settings
- Topic
- Data definitions and terminologies
- Reference data
- Care setting
- Hospital
- Urgent and Emergency Care
Dependencies and related standards
- Dependencies
This standard needs to be reviewed and implemented alongside the NHS Data Model and Dictionary.
- Related standards
- National Cancer Waiting Times Monitoring Data Set DCB0147
- Radiotherapy Data Set DAPB0111
- Systemic Anti-Cancer Therapy Data Set DCB1533
- Diagnostic Imaging Data set SCCI1577
- International Statistical Classification of Diseases and Related Health Problems SCCI0021
- SNOMED CT SCCI0034
- Sexual Orientation Monitoring DCB2094
- Royal College of Pathologists Standards and Data sets for Histopathology
- Reporting on Cancers and Tissue Pathways
- Breast Screening Programme Data Set ISB 1597
- National Cancer Waiting Times Monitoring Data Set
Review Information
- Scope
- NHS Services
- Sponsor
Dr Brian Rous, Director of Tumour Classification, National Disease Registration Service (NDRS), NHS England.
- Senior Responsible Officer
Sarah Stevens, Director for National Disease Registration, National Disease Registration Service (NDRS), NHS England.
- Business Lead
- Andrew Murphy, Head of Cancer Datasets, National Disease Registration Service (NDRS), NHS England.
- Approval date
- 22/08/2023
- Post Implementation review Date
- 30/04/2025
Legal basis and endorsements
- Legal authority
Section 250 of the Health and Social Care Act 2012
This information standard is published under section 250 of the Health and Social Care Act 2012
More information
The Cancer Outcomes and Services Data Set (COSD) is a compiled data set, which provides the standard for secondary uses information required to support national cancer registration and associated analysis (at local, regional, national, and international level), as well as other national cancer audit programmes.
COSD v10.0 defines the data, excluding pathology, which cancer services teams need to collect.
COSD Pathology v5.0 is supplied by services directly by their pathology departments.
COSD provides the standard for secondary uses and consists of:
- a set of individual data items, with their definitions
- the assemblage of these data items into tumour specific discrete data sets
- the means of flowing the data items
- compilation of the data items into two reconciled data sets
- Patient Pathway
- Pathology
Page last updated: 14 May 2024