Cancer Quality of Life Metric Survey
Supports the production of a national quality of life metric for cancer patients.
Contents
- Documentation
About this standard
- Publisher
- NHS England
- Reference code
- DAPB3102 Amd 88/2019
- Publication date
- 10/01/2023
- Status
- Active
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Active. Active standards are stable, maintained and have been approved, assured or endorsed for use by qualified bodies.
Deprecated Deprecated standards are available for use and are maintained, but are being phased out, so new functionality will not be added.
Retired standards Retired standards are not being maintained or supported and should not be used.
- Standard type
- Collections
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Collections. A Collection is a systematic gathering of a specified selection of data or information for a particular stated purpose from existing records held within health and care systems and electronic devices.
Extractions. An extraction is a type of collection that is pulled from an operational system by the data controller and transmitted to the receiver without additional processing or transcription by the sender.
Information standards. Information standards are agreed ways of doing something, written down as a set of precise criteria so they can be used as rules, guidelines, or definitions.
Technical Standards and specifications. Technical standards and specifications specify how to make information available technically including how the data is structured and transported.
- Collection level
Record level
- Frequency
Dataset publication or collection occurs twice a year.
- Contact point
Using this standard
- Applies to
- No impact in the first phase on healthcare organisations
- National Cancer Registration and Analysis Service (NCRAS) will supply patient data to Quality Health and receive results back
- Associated medias
Topics and care settings
- Topic
- Health
Review Information
- Contributor
- Public Health England
- Post Implementation review Date
- 31/03/2021
Legal basis and endorsements
- Legal authority
NHS standard contract
Section 250 of the Health and Social Care Act 2012
This standard is published under section 250 of the Health and Social Care Act 2012.
More information
The survey is for people in England who have had a cancer diagnosis, with people invited to complete the survey around 18 months after diagnosis. It has been running since September 2020, with a gradual roll-out to all cancer types.
The aim of the survey is to find out how quality of life may have changed for people diagnosed with cancer. The survey asks people who have experienced cancer how they are feeling. Their answers will be compared with information about their cancer diagnosis and treatment. This will help the NHS see where care is working well or not so well, and if any new services are needed. It will help the NHS to improve the way it supports people to live as long and as well as possible.
This is a joint project between NHS England and Public Health England (through the National Cancer Registration and Analysis Service - NCRAS).
Page last updated: 22 March 2024