Adult Social Care Data Collections Data Provision Notice

Adult Social Care Data Hub

Survey of carers aged 18 or over who care for a person aged 18 or over in receipt of adult social care services provided by Councils with Adult Social Service Responsibilities.

<p>The surveys are the most significant pool of personal outcome information for those receiving CASSR-funded or managed adult social care, and for carers of people receiving adult social care. They are an important resource for reporting what has been achieved for local people, supporting development and improvement of local services and enabling people to make better choices about their care.</p>
<p>As well as providing an overall quality of life index, they provide intelligence on whether specific groups experience better outcomes, whether services and support are meeting all outcome needs, and the value added by social care services. The surveys provide assured, benchmarked local data to support local services in thinking about ways of improving outcomes for carers and users.</p>


personal-social-services-survey-of-adult-carers-in-england

Personal Social Services Survey of Adult Carers in England

The primary reason why the cared-for person needs social care support

Primary Support Reason of the cared-for person

XML Mapping - 0.xml

2025-11-28T16_27_40.7125267Z[Europe_London]-Class-Hierarchy-Personal Social Services Survey of Adult Carers in England@1.0.3.xlsx

Data-Dictionary-Personal Social Services Survey of Adult Carers in England@1.0.4.xlsx

Adult Social Care Data Collections

Adult Social Care Deferred Payment Agreements

Adult Social Care Finance Return

Blind and Partially Sighted People Register

Deprivation of Liberty Safeguards under the Mental Capacity Act 2005

Guardianship Under the Mental Health Act 1983

Personal Social Services Adult Social Care Survey

Safeguarding Adults Collection

Short and Long Term activity return

NHSE-SD Data Catalogue

ageOrUnknown

Age - Carer (or Q25. How old are you?)

deliveryMechanismOfCaredForPerson

The way in which the cared-for person receives their support

Delivery Mechanism of the cared-for person

ethnicGroupQ28

Ethnic Group - Carer (or Q28. To which ethnic group do you consider you belong?)

fundingStatusOfCaredForPerson

Where does the funding for the cared-for person come from

Funding Status (cared-for person)

genderQ26

Gender of the carer that they consider themselves to be

Gender - Carer (or Q26. Are you male or female?)

methodofAssessmentOrReviewSACE

The method used to carry out the assessment of the carer

Method of Assessment or Review (SACE)

methodOfCollectionSACE

Method by which the survey participant's responses were collected

Method of Collection (SACE)

primarySupportReasonOfCaredForPerson

ageOrNoResponse

Q1. How old is the person you care for?

Q10. Thinking about your personal safety, which of the statements best describes your present situation?

Q11. Thinking about how much social contact you’ve had with people you like, which of the following statements best describes your social situation?

Q12. Thinking about encouragement and support in your caring role, which of the following statements best describes your present situation?

Q13. Thinking about the other people you have caring responsibilities for, which of the following best describes your current situation? Please exclude the person you spend most time helping.

tickedResultQ14

Q14[a]. In the last 12 months, has your health been affected by your caring role in any of the ways listed below? - Feeling tired

Q14[b]. In the last 12 months, has your health been affected by your caring role in any of the ways listed below? - Feeling depressed

Q14[c]. In the last 12 months, has your health been affected by your caring role in any of the ways listed below? - Loss of appetite

Q14[d]. In the last 12 months, has your health been affected by your caring role in any of the ways listed below? - Disturbed sleep

Q14[e]. In the last 12 months, has your health been affected by your caring role in any of the ways listed below? - General feeling of stress

Q14[f]. In the last 12 months, has your health been affected by your caring role in any of the ways listed below? - Physical strain (e.g. back)

Q14[g]. In the last 12 months, has your health been affected by your caring role in any of the ways listed below? - Short tempered/ irritable

Q14[h]. In the last 12 months, has your health been affected by your caring role in any of the ways listed below? - Had to see own GP

Q14[I]. In the last 12 months, has your health been affected by your caring role in any of the ways listed below? - Developed my own health conditions

Q14[j]. In the last 12 months, has your health been affected by your caring role in any of the ways listed below? - Made an existing condition worse

Q14[k]. In the last 12 months, has your health been affected by your caring role in any of the ways listed below? - Other

Q14[l]. In the last 12 months, has your health been affected by your caring role in any of the ways listed below? - No, none of these

Q15. In the last 12 months, has caring caused you any financial difficulties?

Q16. In the last 12 months, have you found it easy or difficult to find information and advice about support, services or benefits?

Question in the survey of adult carers CK

Q17. In the last 12 months, how helpful has the information and advice you have received been? Please include information and advice from different organisations, such as voluntary organisations and private agencies as well as Social Services.

Q18. In the last 12 months, do you feel you have been involved or consulted as much as you wanted to be, in discussions about the support or services provided to the person you care for?

tickedResultQ19

Q19[a]. In addition to your caring role, please tell us which of the following also applies to you? - Retired

Q19[b]. In addition to your caring role, please tell us which of the following also applies to you? - Employed full-time

Q19[c]. In addition to your caring role, please tell us which of the following also applies to you? - Employed part-time (working 30 hours or less)

Q19[d]. In addition to your caring role, please tell us which of the following also applies to you? - Self-employed full-time

Q19[e]. In addition to your caring role, please tell us which of the following also applies to you? - Self-employed part-time

Q19[f]. In addition to your caring role, please tell us which of the following also applies to you? - Not in paid work

Q19[g]. In addition to your caring role, please tell us which of the following also applies to you? - Doing voluntary work

Q19[h]. In addition to your caring role, please tell us which of the following also applies to you? - Other

tickedResultQ2

Medical Condition of the cared for person

Q2[a]. Does the person you care for have....? - Dementia

Q2[b]. Does the person you care for have....? - A physical disability

Q2[c]. Does the person you care for have....? - Sight or hearing loss

Q2[d]. Does the person you care for have....? - A mental health problem

Q2[e]. Does the person you care for have....? - Problems connected to ageing

Q2[f]. Does the person you care for have....? - A learning disability or difficulty

Q2[g]. Does the person you care for have....? - Long-standing illness

Q2[h]. Does the person you care for have....? - Terminal illness

Q2[i]. Does the person you care for have....? - Alcohol or drug dependency

employmentStatusQ20

Q20. Thinking about combining your paid work and caring responsibilities, which of the following statements best describes your current situation?

howLongAsCarerQ21

Q21. About how long have you been looking after or helping the person you care for?

hoursPerWeekQ22

Q22. About how long do you spend each week looking after or helping the person you care for?

tickedResultQ23

Q23[a]. Over the last 12 months, what kinds of things did you usually do for the person you care for? - Personal care?

Q23[b]. Over the last 12 months, what kinds of things did you usually do for the person you care for? - Physical help?

Q23[c]. Over the last 12 months, what kinds of things did you usually do for the person you care for? - Helping with dealing with care services and benefits?

Q23[d]. Over the last 12 months, what kinds of things did you usually do for the person you care for? - Helping with paperwork or financial matters?

Q23[e]. Over the last 12 months, what kinds of things did you usually do for the person you care for? - Other practical help?

Q23[f]. Over the last 12 months, what kinds of things did you usually do for the person you care for? - Keeping him/her company?

Q23[g]. Over the last 12 months, what kinds of things did you usually do for the person you care for? - Taking him/her out?

Q23[h]. Over the last 12 months, what kinds of things did you usually do for the person you care for? - Giving medicines?

Q23[i]. Over the last 12 months, what kinds of things did you usually do for the person you care for? - Keeping an eye on him/her to see he/she is all right?

Q23[j]. Over the last 12 months, what kinds of things did you usually do for the person you care for? - Giving emotional support?

Q23[k]. Over the last 12 months, what kinds of things did you usually do for the person you care for? - Other help?

tickedResultQ24

Q24[a]. Do you have any of the following? - A physical impairment or disability

Q24[b]. Do you have any of the following? - Sight or hearing loss

Q24[c]. Do you have any of the following? - A mental health problem or illness

Q24[d]. Do you have any of the following? - A learning disability or difficulty

Q24[e]. Do you have any of the following? - A long-standing illness

Q24[f]. Do you have any of the following? - Other

Q24[g]. Do you have any of the following? - None of the above

numberOfChildren

Q25. How many children aged 18 or under do you have parental responsibility for?

yesNoNoresponse

Q29. Did someone help you to complete this questionnaire?

The cared for person's usual place of residence

Q3. Where does the person you care for usually live?

yesNoNoresponseQ31

Q31. Would you be happy to be invited to take part in more research? (Voluntary question)

Q4. Overall, how satisfied or dissatisfied are you with the support or services you and the person you care for have received from Social Services in the last 12 months?

yesNoQ5a

Q5a. Has the person you care for used any of the support or services listed below in the last 12 months? - Support or services allowing you to take a break from caring at short notice or in an emergency

yesNoQ5b

Q5b. Has the person you care for used any of the support or services listed below in the last 12 months? - Support or services allowing you to take a break from caring for more than 24 hours

yesNoQ5c

Q5c. Has the person you care for used any of the support or services listed below in the last 12 months? - Support or services to allow you to have a rest from caring for between 1 and 24 hours (e.g. a sitting service)

yesNoQ5d

Q5d. Has the person you care for used any of the support or services listed below in the last 12 months? - Personal assistant

yesNoQ5e

Q5e. Has the person you care for used any of the support or services listed below in the last 12 months? - Home care/home help

yesNoQ5f

Q5f. Has the person you care for used any of the support or services listed below in the last 12 months? - Day centre or day activities

yesNoQ5g

Q5g. Has the person you care for used any of the support or services listed below in the last 12 months? - Lunch club

yesNoQ5h

Q5h. Has the person you care for used any of the support or services listed below in the last 12 months? - Meals Services

yesNoQ5i

Q5i. Has the person you care for used any of the support or services listed below in the last 12 months? - Equipment or adaptation to their home (such as a wheelchair or handrails)

yesNoQ5j

Q5j. Has the person you care for used any of the support or services listed below in the last 12 months? - Lifeline Alarm

yesNoQ5k

Q5k. Has the person you care for used any of the support or services listed below in the last 12 months? - They are permanently resident in a care home

yesNoQ6a

Q6a. Have you used any of the support or services listed below, to help you as a carer over the last 12 months? - Information and advice

yesNoQ6b

Q6b. Have you used any of the support or services listed below, to help you as a carer over the last 12 months? - Support from carers groups or someone to talk to in confidence

yesNoQ6c

Q6c. Have you used any of the support or services listed below, to help you as a carer over the last 12 months? - Training for carers

yesNoQ6d

Q6d. Have you used any of the support or services listed below, to help you as a carer over the last 12 months? - Support to keep you in employment

Q7. Which of the following statements best describes how you spend your time?

Q8. Which of the following statements best describes how much control you have over your daily life?

Q9. Thinking about how much time you have to look after yourself – in terms of getting enough sleep or eating well – which statement best describes your present situation?

religionOfCarer

Defined as the religion that the individual considers themselves to be.

Religion - Carer

sexualOrientationOfCarer

Defined as the sexual orientation that the individual considers themselves to be.

Sexual Orientation - Carer

supportInvolvingCaredForPerson

The type of support provided to the cared-for person

Support involving the cared-for person

supportProvidedToCarer

Support provided to carer

yesNoUnknown

Was the questionnaire translated into another language to allow for completion

Was a translated version of the questionnaire used?

Details whether an advocate aided the survey participant in completing the questionnaire.

Was an advocate used? (SACE)

Details whether an interpreter aided the survey participant in completing the questionnaire.

Was an interpreter used? (SACE)

SACE

Personal Social Services Survey of Adult Carers in England: data specification

Primary Support Reason of the cared-for person

Relationships

Data type