Compliance with National Data Opt-outs
Provides a set of requirements to ensure that all health and adult social care organisations in England can comply with the National data opt-out policy
About this standard
- Publisher
- NHS England
- Reference code
- DCB3058 Amd 91/2018
- Publication date
- 18/03/2019
- Status
- Active
Show definitions of statuses
Active. Active standards are stable, maintained and have been approved, assured or endorsed for use by qualified bodies.
Deprecated Deprecated standards are available for use and are maintained, but are being phased out, so new functionality will not be added.
Retired standards Retired standards are not being maintained or supported and should not be used.
- Standard type
- Information standards
Show definitions of standard types
Collections. A Collection is a systematic gathering of a specified selection of data or information for a particular stated purpose from existing records held within health and care systems and electronic devices.
Extractions. An extraction is a type of collection that is pulled from an operational system by the data controller and transmitted to the receiver without additional processing or transcription by the sender.
Information standards. Information standards are agreed ways of doing something, written down as a set of precise criteria so they can be used as rules, guidelines, or definitions.
Technical Standards and specifications. Technical standards and specifications specify how to make information available technically including how the data is structured and transported.
- Contact point
Link to standard
- Documentation
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- Applies to
- The standard applies to any health or adult social care organisation in England that handles confidential patient information.
- Impacts on
- Implementation of this information standard impacts all health IT systems suppliers providing systems to the above providers; suppliers should work with their customers to determine necessary changes.
- Associated medias
- Conformance date
- 31/03/2020
- Effective from
- 18/03/2019
Topics and care settings
- Topic
- Information codes of practice
- Information governance
- Care setting
- Ambulance (Urgent and Emergency Care)
- Community health
- GP / Primary care
- Hospital
- Maternity
- Mental health
- Prison
- Social care
- Urgent and Emergency Care
Dependencies and related standards
- Related standards
- NHS Number ISB 0149: The NHS number is required for organisations to use the service to check for national data opt-outs.
- Anonymisation Standard for Publishing Health and Social Care Data ISB 1523: Disclosure of information that is anonymised in line with the Information Commissioner’s Office Code of Practice of Anonymisation is out of scope of the national data opt-out.
- Data Security and Protection Toolkit DCB0086: Organisations are required to use the DSP toolkit to demonstrate national data opt-out compliance
- GP Extraction Service - Patient Objections Management SCCI2090-2144 (Retired)
- Patient Objections Management SCCI2199 (Retired)
- NHS Number
Review Information
- Scope
- Health Services, NHS Services, Adult Social Care
- Sponsor
Dawn Monaghan, Head of Strategic Information Governance, NHS Digital
- Senior Responsible Officer
Dawn Monaghan, Head of Strategic Information Governance, NHS Digital
- Business Lead
- Zerlina Heaver, Senior Project Manager, NHS Digital
- Approval date
- 04/03/2019
- Post Implementation review Date
- 31/03/2021
Legal basis and endorsements
- Legal authority
Section 250 of the Health and Social Care Act 2012
This information standard is published under section 250 of the Health and Social Care Act 2012
More information
The national data opt-out policy was introduced on 25 May 2018, enabling patients to opt out from the use of their data for anything other than their individual care and treatment , for example research or planning purposes, in line with the recommendations of the National Data Guardian in her Review of Data Security, Consent and Opt-Outs. By March 2020 all health and adult social care organisations are required to be compliant with the national data opt-out policy, where they are using confidential patient information for purposes beyond an individual's care and treatment.
Page last updated: 20 June 2024