12 Appendix C reference materials (page 15 of 27) in Final report (chapter 2 of 5) within Core Information Standard: Reports

Greater Manchester Core Dataset - Defining the Data sets for Organisations (GM Core Dataset Definition 20170620)

PRSB Standards for the Structure and Content of Health and Care Records (the PRSB standards) (https://theprsb.org/standards/healthandcarerecords/)

Summary Care Record (https://digital.nhs.uk/services/summary-care-records-scr)

International Patient Summary (https://art-decor.org/art-decor/decor-project--hl7ips--)

Medical Interoperability Gateway (https://healthcaregateway.co.uk/services/detailed-care-record/)

USA care co-ordination standard (https://corepointhealth.com/resource-center/white-papers/understanding-continuity-care-record/)

https://en.wikipedia.org/wiki/Continuity_of_Care_Record

Scottish Emergency Care Record and the Key Information Summary (https://www.nhslothian.scot.nhs.uk/GP/InverleithMedicalPractice/EmergencyCareSummary/Pages/default.aspx)

Welsh GP record (http://www.gprecord.wales.nhs.uk/what)

Northern Ireland Emergency Care Summary, Electronic Care Record and Key Information Summary (https://www.nidirect.gov.uk/articles/northern-ireland-electronic-care-record-niecr)

People in control of their own health and care (the Kings Fund) (https://www.kingsfund.org.uk/sites/default/files/field/field_publication_file/people-in-control-of-their-own-health-and-care-the-state-of-involvement-november-2014.pdf)

Personalised Health and Care 2020: Using Data and Technology to Transform Outcomes for Patients and Citizens. A framework for action by the National Information Board (https://www.digitalhealth.net/includes/images/news0254/PDF/0172_NHS_England_NIB_Report_WITH_ADDITIONAL_MATERIAL_S8.pdf)

Joined Up Leeds: Understanding the views of individuals in Leeds on a Personal Health Record by Brainbox Research (https://www.leedsccg.nhs.uk/content/uploads/2018/05/Summary-Joined-Up-Leeds-report-1.pdf)

Personal health record (PHR) User insights by the Health Informatics Unit, Royal College of physicians (https://www.rcplondon.ac.uk/projects/outputs/personal-health-record-phr-user-insights)

Personal Health Record Discovery Report by NHS Digital (https://digital.nhs.uk/services/personal-health-records-adoption-service/personal-health-records-adoption-toolkit)

Personal Health Records: Learning from voices of experience by Patient Information Forum (https://www.pifonline.org.uk/wp-content/uploads/2017/01/PiF-PHR-Guide-2017-V2.pdf)

Personal Health Records: Putting patients in control? by 2020health.org (www.2020health.org/2020health/policy/Policy-A-Z/Patients.html)

A Blueprint for a co-produced Personal Health Record (CoPHR) Ecosystem by Apperta Foundation (https://apperta.org/assets/Apperta_A_Blueprint_for_a_Co-produced_Personal_Health_Record_Ecosystem.pdf)

Documenting Routinely What Matters to People: Standardized Headings for Health Records of Patients with Chronic Health Conditions by Birgit Prodinger, Paul Rastall, Dipak Kalra, Darren Wooldridge & Iain Carpenter (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5966302/)

Personal Health Record (PHR) Landscape Review by the Health Informatics Unit, Royal College of physicians (https://www.rcplondon.ac.uk/projects/outputs/personal-health-record-phr-landscape-review)

Personal Health Records: A Systematic Literature Review by Alex Roehrs, Cristiano André da Costa, Rodrigo da Rosa Righi & Kleinner Silva Farias de Oliveira (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5251169/)

Technical specifications: EMIS, Vision, TPP, e-Referral service data dictionary, Appointment FHIR, Discovery data service core health set

Local Authority data sets: Thames Valley & Surrey - full specifications for adult and child, Greater Manchester - full specifications for adult and child, OneLondon (Newham, Camden), Cheshire Care Record

Leeds Care Record (high level information provided by Leeds Care Record team)

Information Sharing with Care Homes, PRSB (https://theprsb.org/projects/carehomereport/)

End of Life data sets: End of life minimum dataset (NHS Digital), ReSPECT, Coordinate My Care, The Future Planning Project

Crisis care summary, PRSB (https://theprsb.org/standards/crisiscare/)

Maternity record standard, PRSB (https://theprsb.org/standards/maternityrecord/)

Healthy child record, PRSB (https://theprsb.org/standards/healthychildrecordstandard/)

Royal College of Emergency Medicine "Mental health clerking detail is commonly poor in ED notes, and without a prompt it is unlikely that doctors will record the key findings that inform risk." (https://www.rcem.ac.uk/docs/RCEM%20Guidance/Mental%20Health%20Toolkit%202017.pdf)

NICE guidance e.g. Self Harm in ED (https://pathways.nice.org.uk/pathways/self-harm#path=view%3A/pathways/self-harm/psychosocial-assessment-of-self-harm-in-the-emergency-department.xml&content=view-index)

MIND guidance for people suffering mental health crisis (https://www.mind.org.uk/information-support/guides-to-support-and-services/crisis-services/accident-emergency-ae/#.XFrFFdL7TtQ)

RCPsych standards and guidance (https://www.rcpsych.ac.uk/members/your-faculties/liaison-psychiatry/news-and-resources)

MHSDS (https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set)

RiO Clinical downtime forms – SWL&St George’s

Care Notes data model (ACS)

System 1 data model (SABP)