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Core Information Standard: Reports

20 Appendix K survey design (page 23 of 27) in Final report (chapter 2 of 5) within Core Information Standard: Reports

Aims Participants Consultation questions/themes Other considerations
Survey
To test a draft of the core information standard model with a wide group of service users and care providers. All 1. Please tell us your role.
2. Please describe the setting in which you work.
3. Do you agree that sharing core information will bring these benefits?
-Improve the quality and safety of care
-Make care more efficient
-Lead to better integration between services
-Support people to take more control and manage their own care
-Support better care planning and research
4. What concerns do you have about sharing core information?
5. Which of the following benefits would people who use services get from contributing to the information held in their health and care records? For example, recording their needs, values and preferences or measurements they have taken such as blood pressure.
-Improve communication including the timeliness of information sharing e.g. sharing test results
-Promote people managing their own care
-Support making joint decisions with professionals about their care
-Improve efficiency, e.g. avoid repeating information
-Reduce burden on professionals
-Improve safety
6. Can you see any issues arising as a result of people who use services contributing to and sharing their information?
7. Please rate how important this information is to you. Think about what information it would be helpful to know that you can’t currently access.
-About me
-Demographics and contacts
-Legal Information
-Social context
-Family history
-Relevant past history
-Pregnancy status
-Safeguarding and risks
-Medications and allergies
Investigations, examinations and assessments
-Problems, diagnoses, conditions and procedures
-Plan and requested actions
for professionals and the person, including investigations and treatments
-Vaccinations
-Developmental skills
-Participation in research
-Alerts
8. What if anything is missing from the above list?
9. Should 'about me' be prioritised as part of the core information for everyone involved in health and care?
10. Should alerts (e.g. metallic implant, dangerous dogs) be flagged as part of the core information set?
11. Should assessment summaries (which include written assessment outcomes for social care and mental health) be included in the core information set?
12. This subsection is called risks. Does 'risks' describe this section well and is this what you would expect to see in it?
13. Date, location, performing professional, Gynaecology, past obstetric: is this all the information you need to share as part of the core information set about an individual's past pregnancy history?
14. Should current pregnancy status be part of the core information set?
15. Should the core information set include correspondence such as outpatient letters or letters from patients?
16. Should the core information set include details of historic (now closed) child protection plans? (A child protection plan acts to keep a child safe from abuse and neglect.)
17. Should disability be included as a separate section in the core information set? (Mobility, cognitive and accessibility disabilities are currently recorded in individual requirements)
18. Is this all the information needed for end of life care as part of the core information set?
19. Do you have any other comments you would like to add before submitting the survey?

Page last updated: 28 July 2026