This appendix describes the stakeholders who participated in the workshops, the online surveys and the expert reference group.
Work package 1: Workshop attendees (05 April 2017)
| Organisation | Name |
|---|
| Association of Directors of Children’s Services | Karen Graham |
| Bliss | Mehali Patel |
| British Academy of Childhood Disability | Indrani Banerjee |
| British and Irish Orthoptic Society | Michelle Wood |
| British Dietetic Association | Jessica Williams |
| Cerner | Tim James |
| Cerner | Lorraine Edwards |
| Chartered Society of Physiotherapy | Elizabeth Gray |
| Clevermed | Peter Badger |
| Royal College of Occupational Therapists | Beverley Hicks |
| Community Practitioners and Health Visitors Association | Obi Amadi |
| Community Practitioners and Health Visitors Association | Marina Copping |
| EMIS | Andy Williams |
| eRedbook Advisory Board | Catherine Powell |
| Great Ormond Street Hospital for Children NHS Foundation Trust | David Elliman |
| Guys & St Thomas' NHS Foundation Trust | Taiwo Wright |
| In Practice Systems (INPS) | Jonathan Behr |
| Livewell Southwest | Denise Edgecombe |
| National Childbirth Trust | Elizabeth Duff |
| National Children's Bureau | Andrew Fellowes |
| National Children's Bureau | Amanda Allard |
| NHS Digital | Geraldine Hughes |
| NHS Digital | Chris Dickson |
| NHS Digital | Julia Gudgeon |
| NHS Digital | Wendy Mawdsley |
| NHS England | Michael Curtis |
| Parent Representative | Pippa Hammett |
| Parent Representative | Amoy Sinaswee |
| Parent Representative | Jo Morgan |
| Parent Representative | Nadine Taylor |
| Parent Representative | Sabin Qureshi |
| Public Health England | Adam Gregory |
| Public Health England | Jill Walker |
| Public Health England | Coleen Milligan |
| Public Health England | Jane Hibbert |
| Royal College of Midwives |
Mervi Jokinen |
| Royal College of Nursing |
Lynn Sayer |
| Royal College of Nursing |
Zabeda Ali-Fogarty |
| Royal College of Obstetrics and Gynaecology |
Karen Selby |
| Royal College of Paediatrics and Child Health |
Helen Bedford |
| Royal College of Speech and Language Therapists |
Himali de Silva |
| Royal College of Speech and Language Therapists |
Gillian Kennedy |
| Royal Pharmaceutical Society |
Stephen Tomlin |
| Servelec |
Vicky Mudd |
| Shrewsbury & Telford Hospital NHS Trust |
Adam Gornal |
| SiteKit |
Corinna Dymond |
| SiteKit |
Rob Walker |
| TPP |
John Parry |
| Western Health and Social Care Trust |
Ray Nethercott |
Work package 1: Survey respondents (by role)
| Role |
Number |
% |
| Health visitor |
247 |
26.08% |
| Parent / carer |
158 |
16.68% |
| Paediatrician |
100 |
10.56% |
| Nurse |
89 |
9.40% |
| Midwife |
58 |
6.12% |
| Allied health professional |
48 |
5.07% |
| General practitioner |
39 |
4.12% |
| Other doctor |
27 |
2.85% |
| Informatician |
25 |
2.64% |
| IT system supplier |
9 |
0.95% |
| Pharmacist |
7 |
0.74% |
| Social care worker |
6 |
0.63% |
| Psychiatrist |
4 |
0.42% |
| Other |
130 |
13.73% |
| Total |
947 |
|
Work package 2: Workshop attendees (05 June 2017)
| Organisation |
Name |
| British Association for Community Child Health |
Gabriel Whitlingum |
| Cerner |
Tim James |
| Council for Disabled Children |
Andrew Fellowes |
| EMIS |
Andy Williams |
| EMIS |
Karen King |
| eRedbook Advisory Board |
Catherine Powell |
| eRedbook Advisory Board |
Sarah Neil |
| eRedbook Advisory Board |
Susan Norman |
| General and Adolescent Paediatric Research |
Alastair Sutcliffe |
| Collaborative UK and Ireland |
|
| Great Ormond Street Hospital for Children NHS Foundation Trust |
David Elliman |
| Guys and St Thomas' NHS Foundation Trust |
Taiwo Wright |
| Institute of Health Visiting |
Elaine McInnes |
| Institute of Health Visiting |
Hannah Richard |
| Islington Early Years Transformation and Healthy Child Programme |
Lucy Naden |
| Kent Community Health Foundation Trust |
Tracy Body |
| NHS Digital |
Caron Swinscoe |
| NHS Digital |
Chris Dickson |
| NHS Digital |
David Low |
| NHS Digital |
Nicholas Richman |
| NHS South, Central and West Commissioning Support Unit |
Iona Rees |
| North East London Foundation Trust |
Georgina Inniss |
| North East London NHS Foundation Trust |
Abike Akinpelu |
| Parent Representative |
Bhavini Patel |
| Parent Representative |
Iza Gill |
| Parent Representative |
Nadine Taylor |
| Parent Representative |
Sabin Qureshi |
| Public Health England |
Coleen Milligan |
| Public Health England |
Michael Edelstein |
| Royal College of General Practitioners |
Libby Morris |
| Royal College of General Practitioners |
Phil Koczan |
| Royal College of Occupational Therapists |
Caroline Leverett |
| Royal College of Paediatrics and Child Health |
Helen Bedford |
| School and Public Health Nurses Association |
Jill Beswick |
| Servelec |
Vicky Mudd |
| SiteKit |
Corinna Dymond |
| South Warwickshire NHS Foundation Trust |
Diane Aldersley |
| Whittington Health NHS Trust |
Geraldine Butler |
| Whittington Health NHS Trust |
Gita Patel |
Work package 3: Workshop attendees (03 July 2017)
| Organisation |
Name |
| BLISS |
Josie Anderson |
| British Academy of Childhood Disability |
Indrani Banerjee |
| British Association for Community Child Health |
Gabriel Whitlingum |
| British Dietetic Association |
Jessica Williams |
| British Medical Association General Practitioners Committee |
Farah Jameel |
| Cerner |
Tim James |
| Chartered Society of Physiotherapy |
Natalie Drane |
| Community Practitioners and Health Visitors Association |
Marina Copping |
| Council for Disabled Children |
Andrew Fellowes |
| EMIS |
Andy Williams |
| Great Ormond Street Hospital for Children NHS Foundation Trust |
David Elliman |
| Harlow Printing |
Vince Hume |
| ICAN |
Amanda Baxter |
| Institute of Health Visiting |
Elaine McInnes |
| NHS Digital |
Chris Dickson |
| NHS Digital |
David Low |
| Northgate Public Services |
Richard Hewitt |
| Parent Representative |
Ruth Caudwell |
| Parent Representative |
Iza Gill |
| Parent Representative |
Amoy Sinaswee |
| Parent Representative |
Nadine Taylor |
| Public Health England |
Coleen Milligan |
| Royal College of General Practitioners |
Phil Koczan |
| Royal College of General Practitioners |
Libby Morris |
| Royal College of Nursing |
Joanna Grant |
| Royal College of Occupational Therapists |
Caroline Leverett |
| Royal College of Occupational Therapists |
Lesley Smith |
| Royal College of Paediatrics and Child Health |
Helen Bedford |
| Royal College of Speech and Language Therapists |
Sophie Scott |
| Royal College of Speech and Language Therapists |
Himali de Silva |
| School and Public Health Nurses Association |
Jill Beswick |
| Servelec |
Vicky Mudd |
| Whittington Health NHS Trust |
Gita Patel |
Work package 2/3: Survey respondents (by role)
| Role |
Number |
% |
| Parent / carer |
379 |
31.53% |
| Health visitor |
157 |
13.06% |
| Allied health professional |
88 |
7.32% |
| Paediatrician |
67 |
5.57% |
| Other nurse |
62 |
5.16% |
| School nurse |
61 |
5.07% |
| Public health professional |
50 |
4.16% |
| Midwife |
43 |
3.58% |
| General practitioner |
42 |
3.49% |
| Early years practitioner |
35 |
2.91% |
| Informatician |
31 |
2.58% |
| Psychologist |
27 |
2.25% |
| Other doctor |
18 |
1.50% |
| IT system supplier |
14 |
1.16% |
| Teacher |
13 |
1.08% |
| Social care worker |
4 |
0.33% |
| Psychiatrist |
2 |
0.17% |
| Pharmacist |
2 |
0.17% |
| Other |
107 |
8.90% |
| Total |
1202 |
|
Expert reference group attendees (05 October 2017)
| Organisation | Name |
|---|
| British Association for Community Child Health | Gabriel Whitlingum |
| Cerner | Lorraine Edwards |
| EMIS | Steve Roberts |
| Great Ormond Street Hospital for Children NHS Foundation Trust | David Elliman |
| NHS Digital | Chris Dickson |
| NHS Digital | Geraldine Hughes |
| NHS Digital | David Low |
| Public Health England | Helen Duncan |
| Royal College of General Practitioners | Phil Koczan |
| Royal College of Paediatrics and Child Health | Helen Bedford |
| Servelec | Vicky Mudd |