Core Information Standard: Reports

18 Appendix I consultation themes and questions (workshop) (page 21 of 27) in Final report (chapter 2 of 5) within Core Information Standard: Reports

Aims	Participants	Consultation questions/themes
Core Information	All
Test the core standard is understood and deemed useful. To determine what information needs to be shared and the practical benefits and potential consequences of doing so.		Workshop attendees were asked the following questions, which are based on a number of scenarios that were posed to the group.
		Does the core information meet the needs and enable better care in the scenario you have been given?
		- For professionals delivering services?
		- For people using services?
		Which parts of the core information will be particularly valuable in this scenario and why? What are the risks of not sharing this information to a person’s safe care and outcomes?
		Is all the core information needed (according to the criteria discussed)? What information is missing and why is it needed?
		What are the most important areas of core information that should be shared, e.g. clinical data for emergency care? Functional data for care of the elderly? Risk assessments for mental health crisis care? Person-centred data such as about me, wellbeing data, functional abilities? What are the risks and challenges you see in this information being shared?
		The scenarios for session two describe people with specific needs for health and social care support. Does this change what should be included in the core information about these users of services in order to support safe and effective care?
	How would it help a person take more control of their own health and care? How could it help an informal carer or a third sector provider of care?
	In what situations would it be useful to see social care narrative assessments rather than the fact that an assessment has taken place?
	Do you have any concerns about sharing the information? How could those concerns be addressed?
	Should core information include patient/user collected data, goals?
	How should this information be used in providing care?
	Should the core include more information to help people to better understand their medications?
	What information should be in the core information set on temporary or permanent disability? PRSB standards currently include accessibility information.
	What types of patient-provided information such as values, goals, functional ability, wellbeing is useful in a mental health setting?
	Should genetic test information be included in core information or flagged?
	Is there any core information that needs to be collected after death? Is it necessary to include it in the core information?
	Is primary support reason (e.g. a physical health issue that requires social care support and is recorded by social care) useful for health care professionals?
	Should anything identified as abnormal be part of the core information – how do we identify what is abnormal? (e.g. high blood pressure during pregnancy)
	Should safeguarding information be included as core information?
		Should developmental skills remain part of core information after a child with special needs transitions to adult care?

Page last updated: 28 July 2026