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NHS Continuing Healthcare Patient-Level Data Set

Sets out the rules for an end to end, patient level data set that captures data relating to patient details, NHS Continuing health care (CHC) eligibility, activity, reviews and care packages.

About this standard

Publisher
NHS England
Reference code
DCB3085 Amd 51/2019
Publication date
07/05/2020
Status
Active
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Active. Active standards are stable, maintained and have been approved, assured or endorsed for use by qualified bodies.

Deprecated Deprecated standards are available for use and are maintained, but are being phased out, so new functionality will not be added.

Retired standards Retired standards are not being maintained or supported and should not be used.

Standard type
  • Collections
  • Information standards
Show definitions of standard types

Collections. A Collection is a systematic gathering of a specified selection of data or information for a particular stated purpose from existing records held within health and care systems and electronic devices.

Extractions. An extraction is a type of collection that is pulled from an operational system by the data controller and transmitted to the receiver without additional processing or transcription by the sender.

Information standards. Information standards are agreed ways of doing something, written down as a set of precise criteria so they can be used as rules, guidelines, or definitions.

Technical Standards and specifications. Technical standards and specifications specify how to make information available technically including how the data is structured and transported.

Contact point

enquiries@nhsdigital.nhs.uk

Quote ‘DSDS CHC’ in the subject line.

Link to standard

Documentation
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Impacts on
Implementation of this information standard impacts all health IT systems suppliers providing systems to the above providers; suppliers should work with their customers to determine necessary changes.
Associated medias
Conformance date
01/05/2021
Effective from
01/04/2021

Topics and care settings

Topic
  • Adult
  • Continuity of care
  • Data definitions and terminologies
  • Key care information
  • Reference data

Dependencies and related standards

Dependencies

No known dependencies.

Related standards
  • DCB0090 Health and Social Care Organisation Reference Data
  • DCB0086 Data Security and Protection Toolkit
  • ISB0149-01 NHS Number for General Practice
  • ISB0149-02 NHS Number for Secondary Care
  • DCB2094 Sexual Orientation Monitoring
  • DCB0129 Clinical Risk Management: its Application in the Manufacture of Health IT Systems
  • DCB0160 Clinical Risk Management: its Application in the Deployment and Use of Health IT Systems
  • DCB3058 Compliance with National Data Opt-outs
  • DCB1605 Accessible Information
  • DCB2117 NHS Continuing Healthcare Data Set

Review Information

Scope
NHS Services
Sponsor
  • Paul Gavin, Programme Director, Continuing Healthcare Strategic Improvement Programme, NHS England.

Senior Responsible Officer

Trish O’Gorman, Head of NHS Continuing Healthcare, NHS England.

Business Lead
  • Andy Tookey, Head of Analytics, NHS Continuing Healthcare, NHS England and Mussarat Khan, Dataset Maintenance Operational Delivery Manager, NHS England.
Approval date
23/04/2020
Post Implementation review Date
31/05/2022

Legal basis and endorsements

Legal authority
  • Section 250 of the Health and Social Care Act 2012

    This information standard is published under section 250 of the Health and Social Care Act 2012

More information

NHS Continuing Healthcare (NHS CHC) means a package of ongoing care that is arranged and funded solely by the NHS where the individual has been assessed and found to have a ‘primary health need’ as set out in the National Framework for NHS Continuing Healthcare and NHS-funded Nursing.

This new standard, the NHS Continuing Healthcare (NHS CHC) Patient-Level Data Set, sets out the rules for an end to end, patient level data set that captures data relating to:

  • Patient details (date of birth, gender, etc.)
  • NHS CHC eligibility (checklist outcome, Decision Support Tool (DST) outcomes, eligibility, decision process, referral-to-decision times and backlog, etc.)
  • NHS CHC activity (numbers eligible, newly eligible, no longer eligible etc.)
  • Annual, 3-month and ad hoc reviews
  • Local requests for review of eligibility decisions.
  • NHS CHC care packages

Data is submitted monthly by data providers to NHS Digital via the Strategic Data Collection Service (SDCS) Cloud service.

Page last updated: 03 May 2024